Gabriel is our beautiful baby boy. From the beginning, he was weak and hypotonic (arms and legs limp) and had adventures at his birth hospital involving many doctors, blood tests and a noisy MRI. At two weeks old he had episodes of blue lips, then grabbed our attention with a bigger episode and problems breathing. Now we are trying to figure out what he has, and what more, what he needs on a day to day plan.
Friday, July 17, 2015
Explaining it to Sister
Gabriel was more awake, and he started a temporary feeding tube into his intestine (jejunum), but still getting breastmilk. Eleanor visited her brother today. We missed her! Mr Russ, a new friend from Child Life, helped us introduce her to the whole situation and assess how she would handle it; she was good, and was more interested in the machines in the room and the big windows.
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