Aaron and Jo drove in the early morning hours to meet Gabriel in the PICU. He seemed to be doing better and was able to breast-feed and swallow ok, so we went upstairs to the Step down Floor. We continued feeding and nursing and touching and talking to him on the bed. He was weaned off oxygen and IV fluids stopped. But the next day he looked so tired.
We talked to a hospitalist, neurologist, and geneticist. There was a possible diagnosis of Spinal Muscle Atrophy, and that was best to get first before anything else.
He had another episode and we moved back to the PICU for rest on a noninvasive ventilator. He got a mask and a bionic helmet. He gets a constant flow of air to keep his airway open (CPAP) and occasional breaths of more pressure (IPAP) to reduce his work of breathing. We hoped he had more energy to then get off the ventilator and maybe go back to eating.
He had another episode and we moved back to the PICU for rest on a noninvasive ventilator. He got a mask and a bionic helmet. He gets a constant flow of air to keep his airway open (CPAP) and occasional breaths of more pressure (IPAP) to reduce his work of breathing. We hoped he had more energy to then get off the ventilator and maybe go back to eating.
No comments:
Post a Comment