Gabriel is our beautiful baby boy. From the beginning, he was weak and hypotonic (arms and legs limp) and had adventures at his birth hospital involving many doctors, blood tests and a noisy MRI. At two weeks old he had episodes of blue lips, then grabbed our attention with a bigger episode and problems breathing. Now we are trying to figure out what he has, and what more, what he needs on a day to day plan.
Monday, July 20, 2015
Our Brains Hurt
It was a big day, a tough day. We talked to six groups (pretty much our whole team). There is so much we have to think about for Gabriel's comfort and care. We talked more about SMA. Our brains hurt after.
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