A Week in Review

Thursday Gabriel mostly rested, making 3 stable days on his same settings.
We met with discharge planning folks, and about Home nursing help.

Friday started hopeful. We had at least 8 smart people put their heads together about a tubing interface from the Trilogy vent to Gabriel's current nasal mask which fits. He seemed comfortable, with a few adjustments. But later he had some lower oxygen readings while he was breathing comfortably (we know that working harder can cause a desat, this wasn't it) and he had too much carbon dioxide in his blood, so we had to go back to the old vent.

Saturday was a day of rest for Gabriel and worry for the parents. He had an acute low oxygen episode, due to mucus but he got past it. We worried the rest of the day. We will start chest percussion to help him keep that stuff thin and out of his lungs.

Eleanor came to visit again. She has been visiting her cousins and loves them! They went to the lake cabin and she played in the sun and water, now looking tan and older than a few days ago. Their dog plays fetch with her. We are glad she is having fun.

Today we are working on the plan to get home, and breathing is the number one. Gabriel today got a new mask, which fit better than thought last week. He switched to it and tolerated it well. He seems comfortable. It fits over his nose and between his eyes, so he looks a bit like Darth Vader. But all along I've compared his looks to Spock (eyebrow raise), Professor X (bald head) and the Bionic Man, so this is just another step for our sci-fi baby.